New carer guide on dementia-related behaviours

The Carer Handbook for Understanding Changed Behaviours, developed by Dementia Support Australia (DSA)
The Carer Handbook for Understanding Changed Behaviours, developed by Dementia Support Australia (DSA)
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Website Dementia Support Australia

A new free resource is making a significant difference for carers of people living with dementia. The Carer Handbook for Understanding Changed Behaviours, developed by Dementia Support Australia (DSA), has already been downloaded more than 4,150 times since its soft launch on March 26, with a further 824 hard copy orders placed.

Designed to help carers better understand and respond to common behavioural changes in people with dementia, the 25-page guide covers a wide range of symptoms including anxiety, apathy, agitation, aggression, sleep disturbances and hallucinations. These behaviours—often caused by changes in the brain or triggered by pain, confusion, fatigue, or unmet needs—can be distressing for both the person living with dementia and their carer.

The handbook presents each behaviour individually, explaining potential causes and practical responses in clear, accessible language. It also includes links to helpful videos, offering carers easy ways to expand their knowledge at home.

“There are many reasons why behaviour can change for a person living with dementia—understanding why is key to supporting how we respond,” said DSA General Manager Marie Alford. “This handbook enables carers to support their own learning at home so they can be better equipped to know why something might have changed.”

The resource was created with the support of renowned geriatrician Professor Sue Kurrle and draws on nearly a decade of DSA’s frontline experience.

Among those who reviewed the guide prior to release was Steve Wright, 76, from South Launceston, who has cared for his wife Dianne since her Alzheimer’s diagnosis 15 years ago. “What a fantastic guide. It is easy to read and reminded me of what I know about behaviour but had forgotten,” Steve said. “It certainly has improved my knowledge and understanding.” He has already requested a dozen hard copies to share with carers and health professionals.

DSA, led by HammondCare and funded by the Australian Government, provides free nationwide advice and support to carers of people living with dementia. For 24/7 help, contact DSA on 1800 699 799.

DOWNLOAD THE GUIDE HERE